Lee and Kathy Giller have been married for 35 years, making their home in Akron, Ohio. Lee and Kathy’s story is similar to many in our 3-Day community: a strong, loving partnership, an inspirational fight, and a family forever changed by a breast cancer diagnosis. However, there’s one unusual twist to this story. It’s not Kathy who has breast cancer—it’s Lee.
“Lee was first diagnosed in 2005 after feeling a small lump in his breast. Even though we knew men could face breast cancer, it didn’t occur to either of us that this is what he might have. In fact, he first went to a dermatologist thinking the lump was just a cyst,” said Kathy. “The day Lee came home and told us that he had breast cancer, we and our children just huddled in embrace and cried. Cancer is still such a frightening word and is fraught with so many dark thoughts. But once we got past the initial shock and fear, we circled our wagons and began the fight of our lives.”
Like many who face the same diagnosis, Lee had a mastectomy, chemotherapy and radiation. As Lee was finishing up his treatments, his daughter Pamela asked if he wanted to join her for a breast cancer walk. “At first, I was a little offended that Pam didn’t ask if I wanted to participate with them,” said Kathy. “But then she explained that the walk was 60 miles and you camped out and I knew why I wasn’t included! This was something far out of my realm. But it didn’t take me long to decide that if Lee could go through everything he had faced, then I should be able to walk 60 miles and even camp out.”
While the thought of walking and camping were daunting for Kathy, she was most concerned about the fundraising. It’s no secret that at the 3-Day, we ask you to raise $2,300, an ambitious but reachable goal, and an amount that makes a huge impact in the fight against breast cancer. Luckily, Kathy said that fundraising was the easiest part, thanks to the generosity of family and friends. “We’re often asked how we raise so much money and the answer I always give is that like breast cancer, I’m relentless. I ask everyone, I’m persistent, and I always express our heartfelt gratitude. Fundraising is nothing more than a conversation, sharing your personal story. If you are compelling and sincere, people will respond.”
Just six months after Lee finished treatment, team Breast Man Walking walked 60 miles in the Boston 3-Day, using the slogan “Male breast cancer: Rare but Real” to spread awareness with every step. The Gillers have been walking since 2006: with family, their children, Pamela, Annie, and Jay, and a dear friend, Nancy Schrader, whom they met when she was walking on the 3-Day solo.
The Gillers registered for the 2016 San Diego 3-Day, which would mark their 19th walk, but unfortunately, the Gillers will not be able to join us us in San Diego this year. Since his recurrence in 2012, Lee is Stage IV and now fighting cancer in his lungs, bones, liver and brain. While we’re walking on the San Diego 3-Day, the Giller family will be close to Lee’s side, but they are hopeful to return to the 3-Day next year.
After Lee’s diagnosis, he decided to have genetic testing. Being male, aged 48, and Jewish were all red flags that his cancer was hereditary. Lee learned that he was BRCA positive, which meant that there was a 50% chance his three children could have the same mutation. At first, only his daughter Pamela wanted to be tested. She discovered that she also had the same BRCA1 mutation. She was monitored very closely, beginning mammograms and breast ultrasounds at the age of 25. “Then one day when she was just 28 years old, we received a call that no parent could ever imagine. She said, “Mom, I have some good news and some bad news. I have breast cancer, but it was caught early.”
Pamela had a bi-lateral mastectomy but did not need further treatment, and just this past year, had a preventative removal of her ovaries, called an oophorectomy. “Once Pam was diagnosed with breast cancer, our other two children immediately understood how real this disease was. They were both tested for the BRCA1 mutation. Our son has it but our other daughter does not. Unfortunately, there is no protocol for screening men who are BRCA-positive. Self-exams and clinical breast exams are the only recommendations,” explained Kathy.
Kathy’s dear friend Nancy describes Kathy as unstoppable. “Being a co-survivor for both Lee and Pamela has been a labor of love. She will do anything for them, and does. She is passionate about her fundraising because she wants a cure!” said Nancy. Kathy is applauded in the 3-Day community as a fierce advocate for male breast cancer awareness, and has raised a whopping $340,000 since 2006, and over $50,000 this year alone. Kathy’s team has raised almost a half a million dollars since 2006. As Lee’s primary caretaker, Kathy, along with Lee and her family, have made enormous contributions, and not just in fundraising. Kathy avidly encourages the inclusion of the word “men” anytime women and breast cancer are mentioned, and these victories have been evident to those who are close to this cause.
“For those people who think not enough has been done to advance breast cancer research, I would say that of course, we always need more. We still haven’t found the cure. But we have come a long way and Lee is living proof of that. When he was diagnosed with his recurrence 4 years ago, he was told that the average life span would be about 26 months. He’s still here. He still has many treatment options. This would not be the case if it weren’t for organizations like Komen and others who have dedicated themselves to fighting this disease.”
While it is both tragic and unfair that Kathy’s family has been so personally hit by breast cancer, we know that her contributions, while working alongside her family, have changed the public awareness of breast cancer in innumerable ways. We are continuously grateful to warriors like Kathy, Lee, Pamela, Annie, Jay, and Nancy for coming together, to shine a light for families in their darkest times. We all long for a day when breast cancer is just a thing of the past, and new patients can be treated quickly, effectively, and cured. But until then, Kathy reminds us that while we have made so much progress, we must still stay and fight, because: “Breast cancer is an equal opportunity employer: any age, any gender, any color. Be diligent.”