Happy Halloween from the 3-Day Awarewolves

What’s that? Do you hear that howling? Is it Halloween? Or is it…The Awarewolves?!

This amazing team is a staple on the 3-Day, and their costumes keep them Halloween-ready all year long! They walked with us in New England in September, but their 3-Day journey began long before that. It began when Linda Lafragiola was diagnosed with breast cancer in 2011, when she and her sister Kathi Elliot decided that breast cancer would not beat them.

Linda explains, “Since being diagnosed, I decided to raise awareness about early detection and how important it is. Participating in the 3-Day allows me to share my story and experiences with any and everybody, year-round.”

What began as a promise, and a walk, between two sisters, has now grown to a whole team! That team includes their very own Awarewolf, Kathi’s beautiful Siberian Husky, Nika. Nika joined many of Linda and Kathi’s early training walks and quickly became their mascot.

After one of those such walks, the sisters started sharing possible team names with Kathi’s husband, David and her daughter Paige. They were talking about how everyone on the walks jokingly asks if Nika is a wolf, and right on cue, David began singing “Werewolves of London.” Suddenly, the group was singing “Werewolves in San Diego” instead, in honor of their upcoming walk in California.

From there, they all talked about how their team mission was about awareness and early detection, in honor of Linda’s own early diagnosis. So, David came up with AwareWolves. Paige created the team logo. Kathi coined the tagline, “Don’t be afraid — Early detection saves lives”. Linda found the amazing hot pink wolf ears. But they each came up with their own signature howls! And from there, a team was born.

More of how their story and team began, in Kathi’s own words…

“Linda learned that she had breast cancer in 2011. Fortunately, it was an early diagnosis and the cancer was limited to a small tumor. She underwent surgery that summer, followed by six weeks of radiation.

Mid-way through her treatment a friend asked Linda to join her at the Susan G. Komen 3-Day in San Francisco in June 2012. She thought, ‘60 miles in 3 days…if I can survive breast cancer then I can do that!’

As a sister of someone who is going through something like breast cancer, you try to find ways to be helpful. Driving Linda to radiation appointments was something I could do. When Linda said she was walking, I said, ‘Why not me too?!’ From then on, the drives to radiation became a time to plan fundraisers and future training walks.

Linda’s last radiation appointment was on November 1, 2011 and the next morning, we laced up our sneakers and started training. Several months later, we had logged more than 1,000 miles and raised over $5,000 dollars each – enough for two 3-Day walks. So, we decided to register for the San Diego 3-Day in November 2012, as well.

Clearly walking 60 miles is no small feat, especially factoring in inclement weather and hilly terrain, but any 3-Day participant will tell you that the aches, pains and blisters are worth it.

Linda says her first 3-Day in San Francisco was emotional, inspiring and eye opening. It really hit home.

She told me, ‘I met so many women and men whose lives had been touched by breast cancer. It was mind boggling! It helped me to go from feeling like a victim — saying why did this happen to me? — to actually doing something about it.’

Not long after completing our second 3-Day in San Francisco, Linda and I officially started our team, cleverly named…The AwareWolves.”

But that was only the beginning of so many amazing memories for their team and their sisterhood!

Since then, they have walked in nearly ten 3-Days in different cities, and their team has only grown in number and recognition!

“The AwareWolves pack has grown, just by the people we have met along our journey,” explains Linda. “Some of them are veteran 3-Day walkers and crew members. Some are first-time walkers who have joined us to see what it’s all about. Everyone loves our signature ears and I swear some people have joined just to rock the ears and howl with the pack! ? And, we’re ok with that! Our team is made up of people from all over the US and although we walk at different speeds, we know we are there for each other. ? We are known for taking our time, enjoying the event and everything that comes with being in the pink bubble.”

Though in the past the Awarewolves have been in that pink bubble for a few Halloween weekend walks, this year Linda will be part of a group costume, which is a Pac-Man theme, instead!

She and Kathi are gearing up to walk in San Diego in November, and even though Halloween might be in the rearview mirror at that point, you can expect some AwareWolves on the San Diego 3-Day trails. Just keep a pink ear perked up for their howl!

One Face, One Voice: Kim Crist’s Metastatic Breast Cancer Story

Guest Post By: Kim Crist

 

After I finished treatment for early stage breast cancer, I never considered that I was in remission. I told everyone I was cured. The doctors told me after four months of chemotherapy and 40 rounds of radiation that I would be just fine. It took me a long time to really believe that I was going to be okay. For years, I couldn’t drive by my oncologist’s office without having that “sick to my stomach, I had just had chemo” feeling. But the nauseating fears were finally gone when I hit the five-year mark. I remember driving by my doctor’s office and realized I didn’t think about my cancer. I had finally let go of my fears and realized I really did beat this.

It turns out there is no way to know if you have a cancer cell tucked away. It was almost 10 years after my first diagnosis that I was diagnosed with Metastatic, or stage four, disease. They say if you go five or 10 years, you’ve beat it… I thought I was home free. Not one doctor told me the true statistics for recurrence. If I had known, maybe I would have been more diligent in taking my estrogen blocker. Maybe I would have done more research at the time. Perhaps I would have known what symptoms to look out for. The maybes, the what ifs take a toll.

Funny thing is, I thought I was taking care of myself. I worked out and lifted weights, I took exercise classes. I even thought I was doing too much because on two separate occasions I ended up in the ER with crippling back pain. I had to actually leave during the middle of a workout class. Each time being sent home with pain meds and muscle relaxers. Not one doctor asked about a cancer history.

It wasn’t until a routine yearly blood work and oncologist visit to get my mammogram prescription that my doctor saw a rise in my tumor markers…the results you have figured out. What does this diagnosis mean; Metastatic Breast Cancer?? As far as I’m concerned Metastatic disease is a polite way of saying you have stage IV cancer. Stage IV?? We get it now. At least one would think so.

I believe Susan G. Komen is a wonderful platform. We have so much information to share and research left to be done. Walking and raising money allows me to share my story and hopefully teach someone else what to look out for and what questions to ask. Why didn’t those doctors know to ask if I had a history of cancer? Why didn’t I know that bones are the most likely place for initial metastasis? Why didn’t I think to, or better yet, why didn’t I know to ask for an MRI over an X-ray? X-rays don’t show cancer. This is important information that I wish I had known and needs to be shared.

“We need to laugh. We need to laugh at ourselves”

Now, people ask me, “Are you in remission? You’ll be cured, right? Are you done with your medicine?” The answer? No, no and no. They ask, things like, “how long will your medicine work?” Until it doesn’t. Then I’ll find another drug. All in hopes of going another three months praying and stressing that the next scan is stable. I can live with it in my bones, I dread the day it attacks my organs.

Right now, there is no time for being sick and no time for stinky thinking. No time for rest. Now is the time for faith and giving back. Being a Susan G. Komen walker and super supporter has given me an opportunity to talk to people from all over the country. The 3-Day brings together a large community of fighters, survivors and the surviving.

As a 14-year walker I’ve not only seen the impact we have made in research, but I’m living proof. Coming up on five years, I would have never thought I’d have the quality of life that I do. My bones are weakened by the cancer slowly eating away at it, but now there is a simple shot I take every quarter to keep me strong. My freedom and quality come from not being stuck in a chemo chair. Breakthroughs have happened!! But we have to keep working.

“It’s important to keep your strength and be out in nature”

Thank you, Susan G. Komen, thank you fellow supporters, sponsors and researchers. This walker will never give up and I will never give in.

Learn more about Metastatic Breast Cancer. If you or a loved one has questions or needs support, please call 1-877-GO KOMEN.

 

Official Sponsor of the 3-Day®

“Dear Cancer, you lose…”: Meet Survivor and First-Time 3-Dayer, Sylvia G.

If I had to write a letter to cancer it would read, “Dear Cancer, you lose…”

Sylvia just finished five and a half weeks of radiation after being diagnosed with breast cancer shortly after her 40th birthday. Though she initially was shocked and numbed by her diagnosis, she gathered her family and friends around her and got “gangsta with cancer” by refusing to let it stop her from living her life and celebrating every minute of it.

Now, after finishing her radiation, she says, “I am feeling strong and just getting settled into my new normal. The silver lining throughout this process has been to just really LIVE because you never know! And of course, if you’re busy living, you have less time to worry about the small (or big) stuff.”

She is on the other side of one part of her breast cancer journey, but that doesn’t mean the journey is over. After her diagnosis, Sylvia did research into all of the work that Susan G. Komen does to support survivors and those living with breast cancer. This, in turn, led her to the 3-Day. She signed up immediately for the New England 3-Day and will be driving in from her hometown of Pelham, New York to walk in her first-ever 3-Day at our New England 3-Day in September. She’s already fundraised more than $3,500 and is continuing to spread the word about the 3-Day and breast health. To say that breast cancer hasn’t slowed her down is an understatement! But don’t take it from us! Sylvia is here to share her story in her own words…

Tell us your breast cancer story…

I had just turned 40 when my world was turned upside down. I received a call I never expected.

“You have breast cancer.”

And just like that I was numb. The music stopped, and the party was over.

While still in shock, my family immediately took me to my mom’s breast surgeon. She had just finished treatment for stage 1 breast cancer the year before and was a total champion throughout it all, I might add. I was able to get positive preliminary information specific to my breast cancer which helped me start to feel the ground a bit.

We decided to go for several other opinions with breast surgeons and reconstruction surgeons. After choosing the team I felt most comfortable with, we opted for the nipple sparing double mastectomy with reconstructive surgery. My diagnosis after surgery ended up being stage 2 breast cancer that had spread to one lymph node. I learned that I would have to have four rounds of chemo plus radiation.

In the days leading up to my first round of chemo, I kept reflecting on how blessed I am to live in a time of so many medical breakthroughs as well as options for treatment of breast cancer. This is when I realized that I needed to be part of helping to continue these advancements and fight to end breast cancer.

And how did this journey lead you to the 3-Day?

I had read online about Susan G. Komen and how much they have done for research, education, screening and treatment. I knew I had found the right match for my mission to bring us closer to a cure so that so many other people, including my children, will not have to suffer through this. I was gearing up to get gangsta with cancer!

And you have! You’ve been very successful with your fundraising efforts!

I immediately started my fundraising by following all the tips on the 3-Day website. Posting on Facebook, personally emailing all my family and friends, remembering to always send thank you emails as well as follow up emails and telling people about corporate matching gifts. At the end of the day, I really am so blessed to have generous and caring people in my life, some of who also have been impacted by this disease, and I am forever grateful for their support.

Though I have had success in fundraising there does come a point that you have to get creative to be able to keep getting donations outside of just family and friends. One way is to go through all your contacts and see who has a business or works for a company that can partner up with you to create a fundraiser. This in turn allows you to use their resources and reach a larger audience to support your cause.

So far, I am very proud of how much I’ve been able to raise, and I am really looking forward to meeting other survivors, hearing their stories of fearlessness, as well as bonding with my team. I can only imagine that feeling of accomplishment after finishing the 3-Day walk!

What are some of your other 3-Day goals?

I want to reach as many people as possible and remind them of the importance of getting regular mammograms because early detection of breast cancer can make the disease easier to treat. I will also continue to stay focused on my health and positivity so that I can be my best self.

I still have a long way to go but since becoming a survivor I don’t think I can ever justify sweating the small stuff.

I have been dealt a couple bad hands but at the end I plan on winning the game!