July Pink Bubble Story of the Month: Beth B. 

Beth B.: My Story— 4 Words Plus 1  

“A lot can happen in three days” has been running on a continuous loop through my head over this past week. May 12th was my first Mother’s Day without my mom. May 13th was the day phase 2 of treatment began. May 14th was the one-year anniversary of John’s death. It was an incredibly difficult three days for me, exacerbated by radiation burns in my throat which have made it very difficult to swallow and to eat. Thankfully, that has started to ease. 

I never wanted to become the story, but when I was originally diagnosed in 2011, I let myself become the story. I thought it was a way to show people what it’s like to have cancer, to live with cancer, and to live beyond a cancer diagnosis. It also lit a fire in me; a fire to fight, survive, and pay it forward. Every. Single. Day. Publicly sharing your story is daunting for many people [but] it is empowering for me. It puts cancer in its place. Everyone [with cancer] has a story [and] if telling my story helps just one person, then it’s worth it. It is all worth it. To anyone facing a cancer diagnosis, tell your story; tell one person, tell a friend, a stranger, tell me, tell ten people, tell 10,000 people… just tell it. Telling your story prevents cancer from being something sacred or secret and puts the power back in your hands. It also introduces you to all us survivors and thrivers. We are here and we can’t wait to meet you.   

My original story began on November 4th, 2011, with 4 words, “You have breast cancer.” 

“You have a lump.” 

“We found something suspicious.” 

“You have breast cancer.” 

“Lumpectomy, mastectomy, chemo, reconstruction.” 

“You are a survivor.” 

For the last 12+ years, I have lived my life as a survivor. I went to all my follow-up appointments, followed all the rules, I walked and walked and walked, raised money for the cause, [and] lived my life out loud. But there was always a sword hanging over my head because breast cancer is never truly gone. It hides. It lurks. It may stay hidden, [or] it may burst back into sight. It is a dirty, sneaky beast. 

On April 13, 2024, my story became 4 words plus 1, “You have METASTATIC breast cancer.” 

“There is no cure.” 

“There are treatment options.” 

“There are clinical trials.” 

“I will fight this.” 

“We will fight this.” 

“I am a thriver.”  

There are an estimated 168,000 women in the US living with metastatic breast cancer (MBC) and the 5-year survival rate continues to improve, thanks to advancements in treatments that help people like me live longer, and with a better quality of life. Kisquali, the drug I started taking last week, was approved by the FDA in 2018. To anyone who questions why I walk, why I have walked since 1997, why I will always walk (including this November in San Diego), why together we have raised close to $250,000, why Susan G. Komen 3-Day® participants have raised close to $1 billion—this is why. The money we raise goes to fund research [which leads] to clinical trials [which leads] to better treatment options. While there currently is no cure for MBC, people are living longer, better lives with the current drug options.  

I’m sure you’re asking where I am now.  

On May 6th, I completed 10 rounds of radiation to shrink the tumors on my spine. Memorial Sloan Kettering completed blood work which included genetic mapping of my tumors and determined I have no genetic mutations which means I do not qualify for clinical trials. My treatment was transferred up to Albany to my original oncologist and his team. On May 13th, I began phase 2 of treatment which consists of hormone therapy shots of Fulvestrant every three weeks. My current pathology is identical to my original pathology which means this is treated as breast cancer even though it is in my spine, liver and lymph nodes. Kisquali is an oral medication that blocks certain enzymes that feed my cancer which I started this last week. I take three pills a day for 21 days then I get a week off and start all over again. This will continue for the rest of my life or until another protocol is developed. I will also get Prolia injections every three months to strengthen my bones which can be impacted by these medications. This treatment protocol will be so much easier than chemo and with far fewer appointments. 

With this diagnosis, I will continue to live my life out loud. I do this for those who don’t want to, or just can’t tell their stories. This diagnosis is so much harder, but I want and need people to know I’m here if they need me. I want people to understand what MBC is and what it means, to see us Thrivers living with this chronic, not terminal, disease; and we will NOT back down.  

Camping at the San Diego 3-Day

When the Susan G. Komen 3-Day® began in 2003, each evening concluded with walkers pitching their pink tents and setting up camp alongside one another. Participants would decorate their campsite and mingle with one another before calling it a night under the stars. It was an experience unlike any other; an opportunity to soak up the Pink Bubble every second of the day. The community spirit was unending from the Opening Ceremony to the Finish Line Festival. Over time, the Komen 3-Day has evolved to moving camp inside a hotel, which comes with perks of its own, but there’s really nothing quite like the original camping experience. Luckily, the original Pink Bubble experience consisting of a sea of pink tents on the waterfront with amenities galore is still an option at the San Diego 3-Day®. While there are benefits to staying in a hotel, the pros of camping far outweigh the fears that you may have when deciding where to call it a night in San Diego.  

For starters, the San Diego campsite is in a beautiful place on one of the city’s many beloved waterfront properties. In the mornings, there may be kayakers on the water or locals out for a paddle; it’s a very San Diego zen way to start your day! Plus, you can sleep for an extra 30 minutes in the mornings, waking up right where you need to be. No need to take a shuttle – you can walk over to the dining tent, enjoy breakfast and ease into your morning as the day’s hustle and bustle starts.  

Ultimately, you’re located where everything is happening. After you finish walking on the route, you can eat, shower, enjoy your home-away-from-home and spend time talking with other participants. You don’t need to hurry to a shuttle line, decide if you’ll come back to camp for dinner and evening festivities, or choose between comfort and convenience. You can take your time, do some stretching, visit the Remembrance Tent, enjoy your meals, and soak in every second of the Pink Bubble spirit. Many people add their own flare by decorating their tents with twinkly lights, flags, posters, or a fun theme, turning nighttime exploration into an adventure. As the evening activities end, and the hum of conversation quiets down, you can sit under a space heater, enjoy the view of lights across the water, then tuck yourself into your own personal pink tent for the night. 

You’ll have the chance to interact with many more crew members and walkers than you otherwise would. From those who serve your meals to those loading your gear bag in and out of the truck, you have the chance to get to know more people in the 3-Day community. It lends you the opportunity to connect with crew members and walkers who all have a powerful story to share – just like you! Plus, you’ll earn yourself a badge of honor for having experienced the 3-Day the way it all began. 

“We strongly believe that every first-timer should experience camping at the San Diego 3-Day! The camaraderie and unique atmosphere at camp, from waiting in line for showers to making midnight visits to the porta-potties, are invaluable. The sound of chatter and laughter echoing from the dining tent adds to the sense of community and shared purpose that defines the event. It’s an integral part of the 3-Day journey, fostering connections and memories that endure long after the event is over.” —Sarah B. 

How the 3-Day® Inspires this San Diego Police Officer

Each year, the San Diego Police Department attends the Susan G. Komen 3-Day® to provide support and safety along the costal route. Many officers cherish volunteering at this event where they get to join the Pink Bubble and sport their favorite pink accessories, including Paul S. who served 30 years on the force. Best known at the event for his elaborate hair styles, 2023 marked Paul’s 12th year as a volunteer at the Komen San Diego 3-Day. His iconic look began when he decided to dye his hair pink and shave in the breast cancer ribbon to add a bit of joy for those taking on the tremendous feat of walking 60 miles in just three days. As time progressed, walkers began seeking out Paul along the route to see which unique design he etched into the side of his head that year.  

He first discovered the 3-Day® through a police department announcement and knew that he wanted to participate after learning how inspiring the event was. As the years of volunteering have grown, his desire to participate only increases with the tremendous relationships he builds, the support he receives, and the safety he’s able to provide. “[Everyone] treats us police officers as rock stars… It is great to have so many people love you for what you do day in and day out, but most of all I am there for [the walkers],” he shares. “I lift their spirits and they lift mine. Those years when I was a full-time police officer, it was what recharged my batteries so that when I went back to work, I knew that I was loved for who I am and what I do. There is no feeling like being there in uniform, seeing the look in the walkers’ eyes, and feeling the love they have for us… They treat us like we walk on water, but honestly, we officers do not come close to how special the walkers are.”    

Paul has always had a tremendous appreciation for the survivors and thrivers. The first year that he volunteered he was blown away by how inspiring the participants are. However, this year, he felt an even closer connection to the walkers as he was diagnosed with thyroid cancer on June 10th, 2023, which had metastasized to his lungs, liver and spine. Just a few months before the 2023 San Diego 3-Day, Paul underwent six and a half hours of surgery and began treatment, including medication and radiation. In October of 2023, he had a CT scan when the doctors discovered a saddle pulmonary embolism in his lungs for which he was immediately admitted into the emergency room. After his release from the hospital, Paul decided that the best way through this was to remain positive and keep busy with his volunteer work, including coaching high school football, working at a PGA golf tournament, and, of course, the 3-Day.  

The following month, Paul was back in his favorite place: the Pink Bubble. “I was so happy to be alive every day and had a positive attitude about my journey. I wanted to help others keep their positive attitude… more than ever, and I wanted them to help me continue my positive attitude,” he beamed. “I wanted to let them all know that anything is possible if you just stay positive.” After the 2023 3-Day, Paul’s spirits have never been higher, and he shares that he walked away a better person for being there and for participating in the incredible event. He finds solace in his family and friends, through volunteering at events like the 3-Day, and by reminding himself of how much good he’s been able to do throughout his career. Since beginning his service in 1988, Paul was able to lead, mentor, and give advice to countless officers and detectives, and takes tremendous pride in helping them achieve their goals.  

He expresses a tremendous amount of gratitude to the San Diego Police Department for allowing him to participate in the 3-Day all these years. “But most of all I want to thank all the walkers I have known over these years for being there and for allowing them to touch my life and make it have more meaning.” 

The 3-Day community is endlessly grateful for all that the San Diego Police Department has done for us throughout the years. Their support and service are integral to what makes the San Diego 3-Day such a momentous event each and every year. We extend our positivity to Paul as he continues to battle this journey and hope to see him again in 2024.