Health on the Hill: Komen Advocacy Summit Recap by Jesse Kornblum

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Provide us an overview of your experience during the Komen Advocacy Summit.

The 2018 Komen Advocacy Summit is best described as the most beneficial roller coaster ride of my life. I had no idea what to expect. I started the first day nervous about the responsibility that I was given. I am extremely driven to make a positive change to help prevent and cure breast cancer, but the pressure I put on myself to make this trip as impactful as possible made me nervous. I worried I was not the right person for the job.

When the conference started, I found myself seated at a table labeled “Colorado” and was so excited to meet others from home that are advocating for the same things. Everyone started to show up, and I quickly learned that the Colorado crew was fantastic, and we became fast friends. These people were fighters, not just in their personal battles with breast cancer, but in our local communities. All of them were experienced advocates for breast cancer research funding and legislation. I knew that I needed to follow their lead and learn as much as possible. All my nervous feelings changed to excitement. I learned a lot and was given all the tools necessary to hit Capitol Hill and have a meaningful conversation with our elected officials. I fell asleep that night still feeling the overwhelming power of the group as well as shared our excitement for our day on the Hill.

On day two, I woke up once again feeling nervous. I was thinking about the opportunity in front of me and the impact I could have. I didn’t want to let anyone down, especially the cause itself. We had an additional pre-meeting and again, my nervous energy changed to excitement. We loaded onto the buses with the tools and knowledge needed to make a change.

As we approached our first meeting, all my emotions were fighting each other, but excitement prevailed. Once we sat down, I watched the group of experienced advocates go to work. Hearing their stories and seeing how they made the presentation to our representative gave me the confidence that I could do this and there was nothing to fear. From that meeting on, I had fun presenting our data and asks to the representatives. I could answer their questions, and felt confident presenting a case for budget increases and bill sponsorship. As the day went on, we were having such great engagement in our meetings that we were running behind, so we had to divide and conquer. The group was confident that I could conduct a meeting independently. I initially disagreed, but felt relieved and empowered after my solo mission turned out to be very constructive. The representative was very responsive to my presentation.

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That is the moment I told myself that I would not only fight breast cancer through fundraising and participating in events, but would take a much larger role in advocacy. My toolbox now has another amazing power tool that can be used to fight breast cancer.

The third day was an exciting ending to this wild roller coaster ride. We heard from some amazing people who are fighting breast cancer personally as well as people who have devoted their careers and their lives to the fight against breast cancer.

What these people shared with us made me feel empowered and optimistic for the changes we fought for on Capitol Hill. But while these small wins should be celebrated, it is still not enough. Now that I am home, I have not stopped thinking about ways I can be an advocate and how I will continue to help in the fight against breast cancer.

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What was the most impactful part of the Summit?

There were two parts that were extremely impactful:

  1. The team of people I was with from Colorado had confidence in me to conduct a meeting independently with a Colorado representative. This was when I realized I could continue fighting breast cancer with advocacy by taking it head on.
  2. Seeing all the people coming together, despite travel headaches, to take on Capitol Hill to divide and conquer this fight against breast cancer.

Explain your day on Capitol Hill.

My day on Capitol Hill was amazing. I was overwhelmed by the history of the places I was walking, and the power that exists within the walls of Capitol Hill. The day was filled with meetings where we discussed specific topics with either the Member themselves or with a staff member. We had a meeting with every Colorado representative’s office, making it a busy day of running around the Capitol. After every meeting, I walked out feeling that the topics we were discussing and the things we were asking for had be received well and had value to the representatives and their staff.
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What surprised you about the Summit?

How much impact can be made in such a short period of time. Also, I was surprised to how easy it was to talk to the representatives and their staff as I was worried they would be intimidating to talk to prior to the Summit.

What can we do so everyone has a voice in government?

Educate everyone on the ease of contacting their representatives and the respect you will be given, even if just sending an email. If everyone knew how that their voice will be heard and knew how to reach out, I feel they would take the time to do it.

How can others get involved in advocacy?

Writing emails and making calls, as they are received by the representative’s office. There is also a lot of advocacy that is needed locally in every state, so if you want to become an advocate for the cause, I recommend becoming an advocate on Susan G. Komen’s website and keeping an eye out for opportunities to make your voice heard.

What does advocacy mean to you?

Advocacy means change. The education that you can provide to your representatives while being an advocate is the fuel for greater change.

Help us choose the 2018 3-Day Victory T-Shirt Design!

Let’s fast forward a few months to August. Our first walkers and crew of the 2018 3-Day season in Michigan are crossing the final arch into the Closing Ceremony, having just finished 60 amazing, inspiring miles. They are tired, but proud. They are sore, but dedicated. They are victorious. They’re picking up their t-shirts, which they will wear proudly through Closing Ceremony, and again throughout the year, reminding the world that they are More Than Pink®. Now we want to know: which shirt will they wear?

This year, we want our 3-Day family to help us choose the 2018 Victory t-shirt. As a reminder, the chosen design will be used on all Victory t-shirts. If you have a Facebook account, please click here and cast your vote. You only need to vote once, simply by clicking on the image of the shirt you prefer.

 

Don’t have a Facebook account? Feel free to leave a comment on this blog post with your vote.

We’ll share the winner on Friday, April 13th over on our Facebook page.

We can’t wait to see what you choose!

(PS: Stay tuned to our Facebook page the week of April 16th for a special sneak peek of the weekend Crew shirts!)

 

Insight Into Komen’s 2017 Research Grants

This year, Komen announced $30.7 million in research funding for 98 research grants which will mostly focus on discovering new treatments and improving our understanding of the most lethal forms of breast cancer – helping us move closer to achieving our Bold Goal.

For the first time, Komen will be giving members of the public an opportunity to directly fund specific research by participating in a crowdfunding initiative on Komen’s website.

We wanted to share with you the grant process and how the 2017 portfolio breaks down this year since 75% of net proceeds from your fundraising support this research and we could not accomplish any of this work without you.

Peer-Review

Komen has a renowned peer-review process – lead by Komen’s Scientific Advisory Board (SAB) – that ensures the organization is funding the best and most imperative forms of research. Advocates and breast cancer patients also take part in peer-review, to ensure all aspects of breast cancer needs are being covered. You can learn more about peer-review here.

The 2017 research grants came through the request for applications (RFA) issued last year, prior to the Bold Goal announcement in September of 2016. Still, 41.3% of Komen’s grants are focusing on metastatic breast cancer research and 54.4% of grants are focusing on new treatments.

The 2018 process for new proposals began in April and all applications submitted were asked to directly support Komen’s efforts towards the Bold Goal. Researchers were invited to submit projects that addressed metastasis or resistance to current therapies.

This Year

In 2017, Komen research funding went to institutions in 27 states and across 8 countries. The majority of grants are focusing on new screening technologies, metastatic and aggressive types of breast cancer and understanding and addressing disparities in breast cancer. By targeting metastatic disease – which is responsible for almost all of the nation’s 40,000 annual breast cancer deaths – Komen is hoping to reduce breast cancer deaths in the U.S. dramatically. To date, Komen has funded more than $180 million in metastatic breast cancer research. 2017 funding also includes $17.6 million to early-career investigators which helps to ensure a continuum of breast cancer research across generations.

Komen’s 2017 portfolio includes*:

  • 37 grants expanding our knowledge of metastatic breast cancer and how to better treat it or prevent it;
  • 42 grants looking into triple negative breast cancer, an aggressive subtype of breast cancer; 59 grants focused on new therapies;
  • 24 investigating drug resistance (why drugs stop working in some patients);
  • 9 on disparities in breast cancer outcomes;
  • As well as projects investigating inflammatory breast cancer, early detection, prevention, Big Data and more.

Crowdfunding

This fall, Komen is making it possible for supporters to make a personal impact on breast cancer research. During National Breast Cancer Awareness Month in October, Komen will highlight four metastatic breast cancer researchers and encourage donations to their specific grants. More information on the crowdfunding initiative will be announced in October.

Thank You!

When you walk and raise money you are making a direct contribution to our grants. Funds that you raise through 3-Day could  support a young scientist for a day working toward finding the cures, or could support an oncologist for a day as they run clinical trials to find the cures for breast cancer. We could not fund potentially lifesaving research without your help and support. Thank you for the impact that you make here at Komen and always being More Than Pink.

You can learn more about Komen’s 2017 funding here.